Part 23 (2/2)
Ella Bounds died at Carville in 1998 She is buried outside Abita Springs, Louisiana, in an unrave died at Carville in 1998 She is buried outside Abita Springs, Louisiana, in an unrave
In 1999, the Public Health Services closed operations at Carville The patients were given a choice between being relocated to a hospital in Baton Rouge or living on their own and receiving a 33,000 annual stipend Father Reynolds Father Reynolds watched as the Carville residents were removed from their ho in Baton Rouge A year later, a Catholic bishop ordered Father Reynolds's transfer He now lives in a monastery in eastern Kentucky watched as the Carville residents were removed from their ho in Baton Rouge A year later, a Catholic bishop ordered Father Reynolds's transfer He now lives in a ton still lives at Carville In 1999, he and thirty-six other long-term residents refused to leave their home Today, he and fifteen others share the facility with Louisiana juvenile offenders still lives at Carville In 1999, he and thirty-six other long-term residents refused to leave their home Today, he and fifteen others share the facility with Louisiana juvenile offenders
My raduated from sehborhood in Gulfport, Mississippi, where she spends her days doing great things graduated from sehborhood in Gulfport, Mississippi, where she spends her days doing great things
My father, Neil White Jr, Neil White Jr, is a federal ade in Alexandria, Louisiana is a federal ade in Alexandria, Louisiana
Little Neil is a student at Princeton University is a student at Princeton University
Maggie is a student at Davidson College is a student at Davidson College
I live in Oxford, Mississippi, where I operate a s company I am married to Debbie Bell, a law professor at the University of Mississippi We live in a log cabin in the woods She is allergic to cologne
In 2000, the National Hansen's Disease Museum National Hansen's Disease Museum was established at Carville to preserve the unique history of the residents and the leprosarium was established at Carville to preserve the unique history of the residents and the leprosariuh 95 percent of the population is resistant to leprosy, approxinosed with the disease The nu treatment is just over 3,000 In the United States between 150 and 200 new cases of leprosy are reported each year Of the indigenous cases, virtually all are discovered in southern Louisiana and Texas, Gulf Coast areas where there is a high prevalence of leprosy in arh leprosy is now treatable, there is no vaccine; there is no test to determine who is susceptible, and the exact manner of transmission is still not known Most leprosy patients in America never reveal the nature of their disease
ACKNOWLEDGMENTS
I cannot begin to thank all the people who helped ize to those I hurt My deepest apology and sincere regret to Leo, George, and the fine people at Hancock Bank; to Chevis and the Peoples Bank; to my childhood friend William Weatherly; to Joe Casano, as there to lend a hand; to my bankers, Alan and David; and to Bill Metcalf, who tried to giveline of investors who believed in aret, William, Sherman, Ernest, Catherine, and Sarah, and to all the other lenders, vendors, advertisers, subscribers, business associates, freelance writers and photographers, and friends I hurt And a y to the loyal and committed employees who believed my promises I am so sorry
This book is not mine It is a collective effort of hundreds of friends who took an interest in the story, including Colby Kuller, Larry Kadlec, and Cathey Riemann Thanks for your early enthusias: To PaaveTo Will and Patty Lewis for opening doors To Anne Strand for listening To Duncan for leading the Wednesday night services at the church I'd been hoping to find To Taylor, Ollie, and St Peter's Episcopal Church, for everything And to the good people of Oxford for being ined There really is no place like ho, and archival ies, Tanya Thomassie, Cassandra White, Kris Gilliland, Paul Johansen, Vern Evans, Ken Murphy, and Terri Fensel To Marcia Gaudet, Tony Gould, and Zachary Gussow for writing great books about Carville and leprosy To Dr Jaram, who helped me better understand an extraordinarily complex disease, and Elizabeth Schexnyder, curator of the National Hansen's Disease Museu the even more complicated culture and history of Carville To Anwei Law and IDEA as well as Jose Ramirez and The Star The Star for your opinions and notes on nomenclature To all my inmate friends ere just too normal to be included in this book and, of course, to the residents of Carville for their generous storytelling for your opinions and notes on nomenclature To all my inmate friends ere just too normal to be included in this book and, of course, to the residents of Carville for their generous storytelling
To reat readers, Karen Bryant, Mary Ann Reed Bowen, Susannah Northart, Margaret Seicshnaydre, Linda, Julie, Tor, Priscilla, Scott, Debbie and Randy, Cheryl and Cory, Liz and Ja teachers, Cully Randall, David Galef, Darcy Steinke, Steve Yarbrough, Romulus Linney, Marcia Norman, Tom Franklin, Dinty W Moore, Lee Gutkind, and most especially Barry Hannah, my friend and tennis pal, who showedto say
To Carroll Chiles for keeping the store
To Max and Carrie for Crow's Nest
To nized the possibilities, waited patiently, and gently nudged
To the wonderful people at Willia in this story, especially Lisa Gallagher for her enthusiasht, and patience The book wouldn't be the sa brilliance, and Seale Ballenger and Ben Bruton for your invaluable publicity work Also to Stella Connell of The Connell Agency
To my stepmother, Jill, as sane in the crazy years
To Linda Peal for her forgiveness and friendshi+p
To e, wonderful, loyal mother, Jane Stanley, who is best when times are worst Tome always, especially in this public confession To Lindsay, for laughing at whatever I do and welco the three of us into a new family To my wife, Debbie, a remarkable partner, editor, and friend who stepped in where Ella left off To Little Neil and Maggie They say parenting is a one-way street, but that's not true for us Your innocent love while ”Daddy was in cae Walter Gex for holding me accountable
BIBLIOGRAPHY
Elwood, Julia, ed Carville100 Years: Carville Centennial Celebration 18941994 Carville100 Years: Carville Centennial Celebration 18941994 Washi+ngton, DC: US Department of Health and Human Services, 1994--- With Love in Their Hearts With Love in Their Hearts: The Daughters of Charity of St Vincent de Paul 18961996 The Daughters of Charity of St Vincent de Paul 18961996 Washi+ngton, DC: US Department of Health and Hu Leprosy in A Leprosy in America Jackson: University Press of Mississippi, 2004Gould, Tony A Disease Apart: Leprosy in the Modern World A Disease Apart: Leprosy in the Modern World New York: St Martin's Press, 2005Gussow, Zachary Leprosy, Racism, and Public Health: Social Policy in Chronic Disease Control Leprosy, Racism, and Public Health: Social Policy in Chronic Disease Control Boulder, CO: Westview Press, 1989Martin, Betty Miracle at Carville Miracle at Carville New York: Doubleday, 1950Ramirez, Jose, Jr Squint: My Journey with Leprosy Squint: My Journey with Leprosy Jackson: University Press of Mississippi, 2009Secret People: The Naked Face of Leprosy in America DVD Directed by John Anderson and Lisa Harrison Boston: Fanlight Productions, 1995Stein, Stanley, and Lawrence Blocher: The Story of a Man Who Refused to Be One of the Living Dead Alone No Longer: The Story of a Man Who Refused to Be One of the Living Dead New York: Funk & Wagnalls, 1963Triumph at Carville: A Tale of Leprosy in America DVD Directed by John Wilhelton, VA: PBS Video, 2008
National Hansen's Disease Museum, Elizabeth Schexnyder, Curator Physical Location: 5445 Point Clair Road, Building 12, Carville LA 70721Mailing Address: 1770 Physicians Park Drive, Baton Rouge, LA 70816Web: hrsagov/hansens/museumEmail: : 225-642-1950; Fax: 225-642-1949The h Saturdays, 10:00 AM AM to 4:00 PM PM Closed federal holidays
National Hansen's Disease Prograe, LA 70816Web: hrsagov/hansens
PHOTOGRAPH CREDITS
Copyright Ken MurphyPhotograph by Linda PealPhotograph by Neil White JrCopyright 1995, Vern EvansCourtesy of Neil WhiteCopyright 1995, Vern EvansCopyright 1999, Terri FenselPhotograph courtesy of Bureau of PrisonsPhotograph courtesy of Neil White JrCopyright Ken MurphyCopyright Bruce KeyesPhotograph courtesy of Bureau of PrisonsCopyright 1995, Vern EvansPhotograph by Paht Ken MurphyPhotograph courtesy of Neil White JrPhotograph courtesy of Bureau of PrisonsPhotograph courtesy of Linda PealPhotograph courtesy of Jane StanleyCopyright 1992, Paul Mange Johansen / IguanaPhotocoht 1995, Vern EvansCourtesy of National Hansen's Disease MuseumCourtesy of Neil White JrCourtesy of National Hansen's Disease Museuht 1995, Vern Evans
About the Author
NEIL W WHITE is the forazine, Coast New Orleans Magazine, Coast azine, and Coast Business Journal Coast Business Journal He lives in Oxford, Mississippi, where he owns a s company This is his first book He lives in Oxford, Mississippi, where he owns a s company This is his first book
neilwhitecoement, visit: harpercollinsspeakerscom harpercollinsspeakerscom Visit AuthorTrackercom for exclusive information on your favorite HarperCollins author